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Living with a long-term health condition can affect how we think and how we feel, both physically and emotionally. If you’re finding it challenging to move around, or if your vision or hearing isn’t what it used to be, these changes can sometimes lead to feelings of loneliness or make it harder to stay positive. It’s important to understand your condition and find ways to manage it that work for you.

How to manage your long-term health condition

Here are some steps that may help you, or your carer, manage your condition more effectively:

  • Learn about your condition: Understanding your health condition, its treatments, and how to manage it can help you know what to expect and feel more in control.
  • Understand your medication: Be aware of what your medication is for, any special instructions, and potential side effects. This knowledge can help you use your medication safely and prepare for any side effects.
  • Go for your annual review: You are entitled to an annual review for your long term condition at your GP practice. If you haven’t been invited, contact your GP practice to make an appointment so you can talk about what matters to you, monitor your progress, adjust your treatment, address any concerns and reassess your health goals every year.
  • Consider using the getUBetter app: People aged 18 and over who are registered with a Leeds GP are eligible to get the free getUBetter app. The app offers 24/7 support, easy-to-follow exercises and advice to help you manage muscle, bone and joint conditions, recover well and know when to seek help from your GP. You can access it by searching ‘getUBetter’ in your app store or visiting their website.
  • It’s OK to ask: Ask again if you don’t understand something. Whether it’s your initial diagnosis, an annual review or other appointment, don’t feel rushed or embarrassed. Make a list of things you want to talk about before your appointments; these could be things that are important to you.
  • Develop pain and fatigue management skills: Finding ways to manage pain and fatigue can improve your quality of life. This might include techniques such as pacing daily activities, prioritising, relaxation exercises or working with a healthcare professional.
  • Seek emotional support: Connect with family, friends, or support groups. There are both in-person and online groups that can provide comfort and advice. Explore support groups to find one that fits your needs. You could also talk to any professionals you have contact with about your emotional and mental health.
  • Plan for the future: Discuss your future health and care needs with those close to you. Being realistic and prepared can help you feel more secure and supported.
  • Set goals and make plans: Setting small, achievable goals can help you stay motivated. You can use our MindWell MOT resources or this one from the Pain Toolkit to plan time for weekly self-care.
  • Be patient with yourself: Coming to terms with a long-term condition can take time. Be patient and kind to yourself as you adjust and find what works best for you.
  • Stay active: Find ways to stay active that you enjoy. Keeping physically active, within your comfort limits, can boost your mood and overall health.

Living with chronic or persistent pain

For more ideas on how to manage persistent pain, follow these 12 practical pain management tools or look at this guidance from the Institute for Chronic Pain.

Alternatively, if you would like more support in managing long-term or chronic pain, the Leeds Pain Management Service may be able to help. They provide support and advice to help you improve your quality of life. All referrals must come directly from a health professional. If you think you would like to use the service, please visit your Leeds GP who can make a referral for you. Or visit their website for more information.

You can also find peer support groups for pain management in our directory.